tag:blogger.com,1999:blog-6891916918135761055.post6470692767582569084..comments2020-02-23T09:44:48.739-05:00Comments on Dystonia Daughter: a first...Anonymoushttp://www.blogger.com/profile/17744254539726468135noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-6891916918135761055.post-80891625894795041502013-04-24T17:03:01.383-04:002013-04-24T17:03:01.383-04:00I am so sorry to hear about your dad's dystoni...I am so sorry to hear about your dad's dystonic storm. Been there, done that, unfortunately, and my husband and I have educated SO many medical personnel about dystonia and DBS that we have lost count. I am to the point where I will do just about anything to avoid going to an ER, as I know they won't have a clue what to do when I get there. Hope they are able to get the spasms under control quickly, although he WILL be very sore afterwards, too. Just think of having run a marathon continually for hours or even days. When muscles that are not used to that much activity are in such constant stress, the result is pain once they relax. Please feel free to email me if you want to talk or if I can help in any way. I know your dad from the dystonia group in Bham, although I have not been able to attend much lately. My email is rje623@gmail.com. <br />Ramona Edwardsramonahttps://www.blogger.com/profile/07983248736335145137noreply@blogger.com