a couple of of new pieces of information

Lately things around here have been quite hectic and busy seeing that I am 9 months pregnant, but there is a lot of new information floating around that I want to share with you all and hope that you all will be willing to share with others, as well.

First off, the fundraising for the NY Marathon is beginning. Tony has a website set up that will accept donations toward his $2500 minimum goal that is required to run on the DMRF team and that website is www.dystonia-foundation.org/tonysharp. Please consider making a donation, as small or large as you can, to support him in this opportunity to run in honor of my dad and all others who can't run! This money will all stay within the foundation and will go toward vital research on the causes and cures for Dystonia! Thanks in advance for your donations to this!!!

Second thing is that there is a petition that needs as many signatures as we can get for the US to recognize September as Dystonia Awareness Month. This petition is set up through the White House and can be accessed by going here: https://petitions.whitehouse.gov/petition/promote-dystonia-awareness-recognizing-september-dystonia-awareness-month/c64kfwpJ
You must be 13 years old to sign but your nationality doesn't matter! Please consider signing this petition for all of those throughout the US to be able to be recognized in September! Share this link with your friends and family, as well, and ask them to go on and sign it! This takes a mere moments of your day and will make an impact for lifetimes to come if we can get September recognized as Dystonia Awareness Month!

Thanks so much for your attention to these super important opportunities to make a difference in the lives of people with dystonia and very likely, the next time you hear from me, it will be sharing the addition to our family with you all!

Blessings and continue to share what Dystonia is to someone every day! It truly makes a difference!
Rebecca

a rainbow in the sky

As I type this, I have just come inside from admiring the most beautiful rainbow I truly have ever seen! The colors in it were magnificent and the pure majesty of it was something that for a moment, took my breath away!

a sign of hope - 6/6/2013

A rainbow.... a sign of hope.... how appropriate for Dystonia Awareness Week in my life! We have had a pretty rough week with dad and during this week, I have seen so many signs of hope for this disorder and the future of the awareness of the disorder, I truly have hope! Back when my dad really took a significant turn for the worse with his Dystonia and began the process for DBS, I took a step as a personal promise and dedication and it has taken a turn for the better! Because of dying my hair blue, I have gotten such great response over it, I started a "Go Blue" movement on facebook. This movement has drawn people from all over the world to take a moment to wear something blue and to inform just one person about what Dystonia is! People have done everything from their hair to their toenails, to their clothing to wearing blue ribbons in honor of the thousands of people that suffer from this disorder!

Seeing the people that have joined together to make one big movement has been moving and beautiful! I am beyond grateful and honored of all the people "jumping on this bandwagon"! If we would and could all concentrate our efforts into one single movement and all in sync, what a difference we could make and what a mighty force we would be! We have started out in the right direction; let's finish this year strong; and let's make next year even bigger!