In other news.... lol.... we have had a friend secure a spot in the ING NY Marathon to run on behalf of the Dystonia Medical Research Foundation in honor of my dad and all others who can't run! Her name is Jen Devore and the NY Marathon requires each individual running on behalf of a foundation to raise $2500 dollars for that charity. Please consider making a donation to this incredible feat for Jen to do for people she doesn't even know! Here is the website:
Fun info and look for updates soon about the marathon. Until then, keep your head up, press on toward the goal, and always be your own best advocate! Spread the word about Dystonia every day to someone and let's win the battle against lack of knowledge or education about what Dystonia is!